Wednesday, 4 August 2010

Wednesday morning August 4th

Am enjoying my time off for good behaviour. Great to be at home and pottering in garden watching butterflies and bees. Have walked down to the studio a couple of times and started sorting stuff to make it look like I am still working there. So far temperature has been kept down (back inside if it goes up..), but still feeling pretty fragile. Had a hosptial day visit on monday
and good to report that neutrophils are now at a whopping 4 (normal is anywhere between 1.5 and 10) so can now eat anything I like. Unfortunately still pretty much off food though. and still loosing weight, despite snacking on chocolate things and buttered malt bread! Today I have full on hospital: another biopsy on the lump on my neck (though doesnt seem to be there any more, but haematology team are insisting) and a bone marrow biospy. Both these are bloody painful, but very important as they will give an indication as to whether or not first round of chemo has pushed the leukaemia into touch, and therefore will decide on how the treatment continues. I am keeping everything, and more, crossed. Psychologically tough if I get a bad call. but will just have to deal with it somehow. Luigi being usual rock, plus cooking, cleaning, gardening and just all over wonderful looker-after. Has been lovely to see a few friends over these last few days. and hope to see a few more before "return to guys". Had a great massage from Amanda yesterday evening, which inspired a bit of an appetite and even a swig of beer! and thanks to Wayne for constructing a clever "stair cage" to keep Lilly out of upstairs. She doesn't like it, but it means half of the house is cat free, which is essential for next time round. Thanks to all of you for your lovely messages - its great to hear from everybody - keeps my spirit high (and it
does flag occasionally!) love to you all. A presto, x

4 comments:

  1. Hi Tessa
    Hope being at home brings back some sense of a return to normality. I'm thinking of buying a little mini cam and little mini table top tripod to extend the podcasts. It seems you can get everything in minature these days - even desktop studios! All the best from Tankerton. Vongole!

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  2. Hi T

    Hope today at the hospital goes well, glad you're enjoying being at home again long may it last. That cat cage sounds like a bit of genius.

    Good to hear Luigi is doing such a grand job at looking after, it's great he's able to be there with you. Will keep everything crossed for good result from bone marrow biopsy and see you soon.

    love jan x

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  3. It's nice to hear you've enjoyed a bit of pottering, hospital can seem like a tiny world of it's own. Thinking of you and hoping the further tests aren't too painful and the ensuing results are good.
    Lots of love and sending healing thoughts.
    Lou
    {*}

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  4. Tess,

    Leaving tomorrow for Vegas! Will think of you while I'm there for sure. Good luck today, and like your friend Lou puts it (very nicely I might add)I'm sending lots of love and healing thoughts. Can you feel the vibrations?

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